Article Dans Une Revue European Journal of Oncology Nursing Année : 2025

Parents' subjective experience of the parenting process in paediatric oncology during hospitalisation at home

Résumé

Purpose Around 2260 new cases of cancer are diagnosed annually in children in France. Hospitalisation at home (HaH) represents a growing alternative to the more conventional hospital stay, since it enables children with cancer to receive medical care in the home while remaining in a familiar environment. Parents of children can face a significant redefinition of their parenting roles, caught between the continuity of family life and the demands of medical care. The aim of this study was to describe the parenting process from the perspective of parents of children with cancer hospitalised at home. Method Semi-structured interviews were conducted individually with parents (n = 27) of children with cancer in two French structures. The interviews were transcribed verbatim, and reflexive thematic analysis was applied. Results Our findings highlight a parenting process structured around three main dimensions, which functions as a dynamic system characterised by a constant interplay between (1) forms of parenting, (2) a continuous parental presence that remains stable over time and (3) the guilt that fuels the process. Conclusions Parenting process during HaH is dynamic, adaptive and marked by a high emotional and mental burden. In this way, parents must constantly reinvent parenting by integrating new skills to respond to the needs of their children with cancer. Recognising this complexity may aid professionals to the issues confronted by parents caring for children with cancer at home setting.

Dates et versions

hal-05466062 , version 1 (19-01-2026)

Identifiants

Citer

Voskan Kirakosyan, Matthieu Plichart, Fatima Laradji, Caroline Miler, Adeline Mallard, et al.. Parents' subjective experience of the parenting process in paediatric oncology during hospitalisation at home. European Journal of Oncology Nursing, 2025, 79, pp.103016. ⟨10.1016/j.ejon.2025.103016⟩. ⟨hal-05466062⟩
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