Systemic lupus erythematosus: state of the art on clinical practice guidelines.
2 HUS - Hôpitaux Universitaires de Strasbourg
3 Azienda Ospedaliera Universitaria Pisana
4 UniFE - Università degli Studi di Ferrara = University of Ferrara
5 Charité - UniversitätsMedizin = Berlin University Medicine
6 CHU Pitié-Salpêtrière [AP-HP]
7 UMCL - University Medical Centre Ljubljana
8 Clinic Barcelona Hospital Universitari
9 UNIROMA - Università degli Studi di Roma "La Sapienza" = Sapienza University [Rome]
10 CHU Dijon - Centre Hospitalier Universitaire de Dijon - Hôpital François Mitterrand
11 UB - Université de Bourgogne
12 AOUP - Azienda Ospedale Università di Padova = Hospital-University of Padua
13 Spedali Civili Hospital [Brescia]
14 Centro Hospitalar de Lisboa Central [Portugal]
15 CHULN - Centro Hospitalar Universitário Lisboa Norte [Lisbon, Portugal]
16 UniGe - Università degli studi di Genova = University of Genoa = Université de Gênes
17 UvA - Universiteit van Amsterdam = University of Amsterdam
18 Amsterdam UMC - Amsterdam Rheumatology & Immunology Center - ARC [Amsterdam, the Netherlands]
19 NKUA - National and Kapodistrian University of Athens
20 UniPi - University of Pisa [Italy] = Università di Pisa [Italia] = Université de Pise [Italie]
21 CeRAINO - Centre National de Référence des Maladies Auto-Immunes Systémiques Rares du Nord et Nord-Ouest de France
22 LIRIC - Lille Inflammation Research International Center - U 995
23 CHRU Lille - Centre Hospitalier Régional Universitaire [CHU Lille]
24 Kerckhoff clinic
25 Universitätsklinikum Düsseldorf
26 UGent - Universiteit Gent = Ghent University = Université de Gand
27 Hôpital Cochin [AP-HP]
28 CRESS (U1153 / UMR_A_1125 / UMR_S_1153) - Centre de Recherche Épidémiologie et Statistique Sorbonne Paris Cité
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Abstract
Systemic lupus erythematosus (SLE) is the paradigm of systemic autoimmune diseases characterised by a wide spectrum of clinical manifestations with an unpredictable relapsing-remitting course. The aim of the present work was to identify current available clinical practice guidelines (CPGs) for SLE, to provide their review and to identify physicians' and patients' unmet needs. Twenty-three original guidelines published between 2004 and 2017 were identified. Many aspects of disease management are covered, including global disease management, lupus nephritis and neuropsychiatric involvement, management of pregnancies, vaccinations and comorbidities monitoring. Unmet needs relate with disease management of some clinical manifestations and adherence to treatment. Many patient's unmet needs have been identified starting with faster diagnosis, need for more therapeutic options, guidelines on lifestyle issues, attention to quality of life and adequate education.