[Quality of life of very disabled children: a questionnaire about the role of health status and tube feeding]. - Archive ouverte HAL Accéder directement au contenu
Article Dans Une Revue Archives de Pédiatrie Année : 2007

[Quality of life of very disabled children: a questionnaire about the role of health status and tube feeding].

E. André
I. Hodgkinson
  • Fonction : Auteur
C. Bérard
  • Fonction : Auteur

Résumé

UNLABELLED: To resort to gastrostomy feeding is a difficult decision to take in children with severe disability, the objective being better quality of life. OBJECTIVES: To describe quality of life in children with severe disability and to look for factors which influence this quality of life, in particular gastrostomy. METHOD: Descriptive study in 28 patients, aged 1 to 18 years, with severe motor and mental disability, with or without gastrostomy. The studied factors were: health and nutritional status and quality of life. The quality of life was evaluated with QUALIN questionnaire, specifically designed for infants. RESULTS: This questionnaire was pertinent and well accepted by the family. Quality of life was influenced by capacity of communication (P=0.006), quality of sleeping (P=0.004), digestive problems (P<0.05) and age (P=0.031). CONCLUSION: Gastrostomy did not impair quality of life. Its benefit was estimated as high as 8.71/10 in average by parents.

Domaines

Neurosciences

Dates et versions

hal-00655315 , version 1 (27-12-2011)

Identifiants

Citer

E. André, I. Hodgkinson, C. Bérard, V. Des Portes. [Quality of life of very disabled children: a questionnaire about the role of health status and tube feeding].. Archives de Pédiatrie, 2007, 14 (9), pp.1076-83. ⟨10.1016/j.arcped.2007.03.027⟩. ⟨hal-00655315⟩
41 Consultations
0 Téléchargements

Altmetric

Partager

Gmail Facebook X LinkedIn More