Article Dans Une Revue Ethics, Medicine and Public Health Année : 2025

Genetics’ exceptionality – A short perspective from clinical care

L'exceptionnalité de la génétique - une courte perspective depuis la clinique

Résumé

Genetics exceptionality relies on the strong imaginaries associated with this particular type of biological information – its capacity to disclose the invisible intimate- and on the concerns for controlling its possibly negative social impacts – the genetic information is always both highly specific and shared within families and populations. The paper claims that together with specific legal frameworks, this exceptionality is also embodied by the amount of effort performed in the clinic to control the strong uncertainties associated with the usage of this scientific knowledge in care contexts.

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Dates et versions

hal-05052662 , version 1 (30-04-2025)

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Catherine Bourgain. Genetics’ exceptionality – A short perspective from clinical care. Ethics, Medicine and Public Health, 2025, 33, pp.101104. ⟨10.1016/j.jemep.2025.101104⟩. ⟨hal-05052662⟩
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