<?xml version="1.0" encoding="utf-8"?>
<TEI xmlns="http://www.tei-c.org/ns/1.0" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns:hal="http://hal.archives-ouvertes.fr/" xmlns:gml="http://www.opengis.net/gml/3.3/" xmlns:gmlce="http://www.opengis.net/gml/3.3/ce" version="1.1" xsi:schemaLocation="http://www.tei-c.org/ns/1.0 http://api.archives-ouvertes.fr/documents/aofr-sword.xsd">
  <teiHeader>
    <fileDesc>
      <titleStmt>
        <title>HAL TEI export of hal-04681400</title>
      </titleStmt>
      <publicationStmt>
        <distributor>CCSD</distributor>
        <availability status="restricted">
          <licence target="https://creativecommons.org/publicdomain/zero/1.0/">CC0 1.0 - Universal</licence>
        </availability>
        <date when="2026-05-25T09:39:44+02:00"/>
      </publicationStmt>
      <sourceDesc>
        <p part="N">HAL API Platform</p>
      </sourceDesc>
    </fileDesc>
  </teiHeader>
  <text>
    <body>
      <listBibl>
        <biblFull>
          <titleStmt>
            <title xml:lang="en">Quality of Life in Young Adults With Cerebral Palsy: A Longitudinal Analysis of the SPARCLE Study</title>
            <author role="aut">
              <persName>
                <forename type="first">Nicolas</forename>
                <surname>Vidart D’egurbide Bagazgoïtia</surname>
              </persName>
              <email type="md5">dc22158a8055476c6f6c287a1f2bb703</email>
              <email type="domain">inserm.fr</email>
              <idno type="idhal" notation="numeric">1236690</idno>
              <idno type="halauthorid" notation="string">2755335-1236690</idno>
              <idno type="ORCID">https://orcid.org/0000-0001-5511-6746</idno>
              <idno type="IDREF">https://www.idref.fr/273753924</idno>
              <affiliation ref="#struct-1160983"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Virginie</forename>
                <surname>Ehlinger</surname>
              </persName>
              <email type="md5">181d190ac760a57a9c34e93fb1bab2dd</email>
              <email type="domain">inserm.fr</email>
              <idno type="idhal" notation="string">virginie-ehlinger</idno>
              <idno type="idhal" notation="numeric">918561</idno>
              <idno type="halauthorid" notation="string">481065-918561</idno>
              <idno type="ORCID">https://orcid.org/0000-0003-4992-5998</idno>
              <affiliation ref="#struct-1160983"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Carine</forename>
                <surname>Duffaut</surname>
              </persName>
              <email type="md5">f63fdb6f931a118acc282c6578a80a07</email>
              <email type="domain">inserm.fr</email>
              <idno type="idhal" notation="string">carineduffaut</idno>
              <idno type="idhal" notation="numeric">862651</idno>
              <idno type="halauthorid" notation="string">410941-862651</idno>
              <idno type="ORCID">https://orcid.org/0000-0003-4773-5736</idno>
              <affiliation ref="#struct-1160983"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Jérôme</forename>
                <surname>Fauconnier</surname>
              </persName>
              <idno type="idhal" notation="numeric">1404440</idno>
              <idno type="halauthorid" notation="string">321188-1404440</idno>
              <idno type="ORCID">https://orcid.org/0000-0002-1850-3971</idno>
              <affiliation ref="#struct-1043049"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Silke</forename>
                <surname>Schmidt-Schuchert</surname>
              </persName>
              <idno type="halauthorid">3222051-0</idno>
              <affiliation ref="#struct-462070"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Ute</forename>
                <surname>Thyen</surname>
              </persName>
              <idno type="halauthorid">321177-0</idno>
              <affiliation ref="#struct-166039"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Kate</forename>
                <surname>Himmelmann</surname>
              </persName>
              <idno type="halauthorid">562919-0</idno>
              <affiliation ref="#struct-302859"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Marco</forename>
                <surname>Marcelli</surname>
              </persName>
              <idno type="halauthorid">321181-0</idno>
              <affiliation ref="#struct-207298"/>
            </author>
            <author role="aut">
              <persName>
                <forename type="first">Catherine</forename>
                <surname>Arnaud</surname>
              </persName>
              <email type="md5">fe6762975013b98d7649245ee9168870</email>
              <email type="domain">cict.fr</email>
              <idno type="idhal" notation="numeric">1106668</idno>
              <idno type="halauthorid" notation="string">321172-1106668</idno>
              <idno type="ORCID">https://orcid.org/0000-0002-4002-802X</idno>
              <idno type="IDREF">https://www.idref.fr/094960003</idno>
              <affiliation ref="#struct-300075"/>
              <affiliation ref="#struct-1160983"/>
            </author>
            <editor role="depositor">
              <persName>
                <forename>Alice</forename>
                <surname>Vallart</surname>
              </persName>
              <email type="md5">2f90b5165d9bd4a76df98cbbfb72b3e7</email>
              <email type="domain">toulouse-inp.fr</email>
            </editor>
            <funder ref="#projanr-43851"/>
            <funder>This work was supported by the Deutsche Forschungsgemeinschaft (DFG) and the French Agence Nationale de la Recherche (ANR) (DFG-ANR N°316684170) in Germany and France; the Sunnerdahls Handikappfond, the Swedish state under the agreement between Swedish government and the country councils, the ALF-agreement (ALFGBG-726001) in Sweden; and the Fondazione Carivit in Italy. The funders were not involved in any way in the preparation of this manuscript or the decision to submit it.</funder>
          </titleStmt>
          <editionStmt>
            <edition n="v1" type="current">
              <date type="whenSubmitted">2024-08-29 15:57:12</date>
              <date type="whenModified">2026-04-23 18:04:03</date>
              <date type="whenReleased">2024-08-29 15:57:12</date>
              <date type="whenProduced">2021-11-01</date>
              <ref type="externalLink" target="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8591289"/>
            </edition>
            <respStmt>
              <resp>contributor</resp>
              <name key="1465355">
                <persName>
                  <forename>Alice</forename>
                  <surname>Vallart</surname>
                </persName>
                <email type="md5">2f90b5165d9bd4a76df98cbbfb72b3e7</email>
                <email type="domain">toulouse-inp.fr</email>
              </name>
            </respStmt>
          </editionStmt>
          <publicationStmt>
            <distributor>CCSD</distributor>
            <idno type="halId">hal-04681400</idno>
            <idno type="halUri">https://hal.science/hal-04681400</idno>
            <idno type="halBibtex">vidartdegurbidebagazgoitia:hal-04681400</idno>
            <idno type="halRefHtml">&lt;i&gt;Frontiers in Neurology&lt;/i&gt;, 2021, 12, pp.733978. &lt;a target="_blank" href="https://dx.doi.org/10.3389/fneur.2021.733978"&gt;&amp;#x27E8;10.3389/fneur.2021.733978&amp;#x27E9;&lt;/a&gt;</idno>
            <idno type="halRef">Frontiers in Neurology, 2021, 12, pp.733978. &amp;#x27E8;10.3389/fneur.2021.733978&amp;#x27E9;</idno>
            <availability status="restricted"/>
          </publicationStmt>
          <seriesStmt>
            <idno type="stamp" n="UNIV-TLSE3">Université de Toulouse</idno>
            <idno type="stamp" n="UGA">HAL Grenoble Alpes</idno>
            <idno type="stamp" n="IMAG">IMAG</idno>
            <idno type="stamp" n="CNRS">CNRS - Centre national de la recherche scientifique</idno>
            <idno type="stamp" n="INPG">Institut polytechnique de Grenoble</idno>
            <idno type="stamp" n="SANTE_PUB_INSERM" corresp="INSERM">Santé Publique à l'Inserm</idno>
            <idno type="stamp" n="TIMC-IMAG">TIMC</idno>
            <idno type="stamp" n="UNIV-LYON">Université de Lyon</idno>
            <idno type="stamp" n="UGA-EPE">Université Grenoble Alpes [2020-*]</idno>
            <idno type="stamp" n="ANR">ANR</idno>
            <idno type="stamp" n="UNIV-UT3">Université Toulouse 3</idno>
            <idno type="stamp" n="UT3-INP">Université de Toulouse / Toulouse INP</idno>
            <idno type="stamp" n="UT3-TOULOUSEINP">Université de Toulouse / Toulouse INP</idno>
            <idno type="stamp" n="CERPOP">CERPOP</idno>
            <idno type="stamp" n="CERPOP-SPHERE" corresp="CERPOP">SPHERE</idno>
            <idno type="stamp" n="TEST-UGA">TEST-UGA</idno>
            <idno type="stamp" n="ANR_SANTE_MENTALE">ANR SANTE MENTALE</idno>
          </seriesStmt>
          <notesStmt>
            <note type="audience" n="2">International</note>
            <note type="popular" n="0">No</note>
            <note type="peer" n="1">Yes</note>
          </notesStmt>
          <sourceDesc>
            <biblStruct>
              <analytic>
                <title xml:lang="en">Quality of Life in Young Adults With Cerebral Palsy: A Longitudinal Analysis of the SPARCLE Study</title>
                <author role="aut">
                  <persName>
                    <forename type="first">Nicolas</forename>
                    <surname>Vidart D’egurbide Bagazgoïtia</surname>
                  </persName>
                  <email type="md5">dc22158a8055476c6f6c287a1f2bb703</email>
                  <email type="domain">inserm.fr</email>
                  <idno type="idhal" notation="numeric">1236690</idno>
                  <idno type="halauthorid" notation="string">2755335-1236690</idno>
                  <idno type="ORCID">https://orcid.org/0000-0001-5511-6746</idno>
                  <idno type="IDREF">https://www.idref.fr/273753924</idno>
                  <affiliation ref="#struct-1160983"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Virginie</forename>
                    <surname>Ehlinger</surname>
                  </persName>
                  <email type="md5">181d190ac760a57a9c34e93fb1bab2dd</email>
                  <email type="domain">inserm.fr</email>
                  <idno type="idhal" notation="string">virginie-ehlinger</idno>
                  <idno type="idhal" notation="numeric">918561</idno>
                  <idno type="halauthorid" notation="string">481065-918561</idno>
                  <idno type="ORCID">https://orcid.org/0000-0003-4992-5998</idno>
                  <affiliation ref="#struct-1160983"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Carine</forename>
                    <surname>Duffaut</surname>
                  </persName>
                  <email type="md5">f63fdb6f931a118acc282c6578a80a07</email>
                  <email type="domain">inserm.fr</email>
                  <idno type="idhal" notation="string">carineduffaut</idno>
                  <idno type="idhal" notation="numeric">862651</idno>
                  <idno type="halauthorid" notation="string">410941-862651</idno>
                  <idno type="ORCID">https://orcid.org/0000-0003-4773-5736</idno>
                  <affiliation ref="#struct-1160983"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Jérôme</forename>
                    <surname>Fauconnier</surname>
                  </persName>
                  <idno type="idhal" notation="numeric">1404440</idno>
                  <idno type="halauthorid" notation="string">321188-1404440</idno>
                  <idno type="ORCID">https://orcid.org/0000-0002-1850-3971</idno>
                  <affiliation ref="#struct-1043049"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Silke</forename>
                    <surname>Schmidt-Schuchert</surname>
                  </persName>
                  <idno type="halauthorid">3222051-0</idno>
                  <affiliation ref="#struct-462070"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Ute</forename>
                    <surname>Thyen</surname>
                  </persName>
                  <idno type="halauthorid">321177-0</idno>
                  <affiliation ref="#struct-166039"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Kate</forename>
                    <surname>Himmelmann</surname>
                  </persName>
                  <idno type="halauthorid">562919-0</idno>
                  <affiliation ref="#struct-302859"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Marco</forename>
                    <surname>Marcelli</surname>
                  </persName>
                  <idno type="halauthorid">321181-0</idno>
                  <affiliation ref="#struct-207298"/>
                </author>
                <author role="aut">
                  <persName>
                    <forename type="first">Catherine</forename>
                    <surname>Arnaud</surname>
                  </persName>
                  <email type="md5">fe6762975013b98d7649245ee9168870</email>
                  <email type="domain">cict.fr</email>
                  <idno type="idhal" notation="numeric">1106668</idno>
                  <idno type="halauthorid" notation="string">321172-1106668</idno>
                  <idno type="ORCID">https://orcid.org/0000-0002-4002-802X</idno>
                  <idno type="IDREF">https://www.idref.fr/094960003</idno>
                  <affiliation ref="#struct-300075"/>
                  <affiliation ref="#struct-1160983"/>
                </author>
              </analytic>
              <monogr>
                <idno type="halJournalId" status="VALID">71525</idno>
                <idno type="issn">1664-2295</idno>
                <title level="j">Frontiers in Neurology</title>
                <imprint>
                  <publisher>Frontiers Media</publisher>
                  <biblScope unit="volume">12</biblScope>
                  <biblScope unit="pp">733978</biblScope>
                  <date type="datePub">2021-11-01</date>
                </imprint>
              </monogr>
              <idno type="doi">10.3389/fneur.2021.733978</idno>
              <idno type="pubmed">34790161</idno>
              <idno type="pubmedcentral">PMC8591289</idno>
            </biblStruct>
          </sourceDesc>
          <profileDesc>
            <langUsage>
              <language ident="en">English</language>
            </langUsage>
            <textClass>
              <keywords scheme="author">
                <term xml:lang="en">trajectories</term>
                <term xml:lang="en">quality of life</term>
                <term xml:lang="en">pain</term>
                <term xml:lang="en">impairments</term>
                <term xml:lang="en">cerebral palsy</term>
                <term xml:lang="en">adults</term>
              </keywords>
              <classCode scheme="halDomain" n="sdv.spee">Life Sciences [q-bio]/Santé publique et épidémiologie</classCode>
              <classCode scheme="halTypology" n="ART">Journal articles</classCode>
              <classCode scheme="halOldTypology" n="ART">Journal articles</classCode>
              <classCode scheme="halTreeTypology" n="ART">Journal articles</classCode>
            </textClass>
            <abstract xml:lang="en">
              <p>Introduction: While most people with cerebral palsy (CP) will have a life expectancy similar to that of the general population, international research has primarily focused on childhood and adolescence; and knowledge about the quality of life (QoL) of young adults with CP, its trajectories, and associated factors remains scarce. Methods: This longitudinal study included young adults with CP living in five European regions and who had previously participated in the SPARCLE cohort as children and/or adolescents. Their QoL in the psychological well-being and social relationships domains was estimated using age-appropriate validated instruments (KIDSCREEN-52 in childhood/adolescence and WHOQOL-Bref in young adulthood). We used generalized linear mixed-effect models with random intercept to estimate long-term trajectories of QoL in both domains and to investigate whether severity of impairment, pain, and seizure influenced these trajectories. We sought to identify potentially different trajectories of QoL from childhood to adulthood using a shape-based clustering method. Results: In total, 164 young adults with CP aged 22–27 years participated in the study. Psychological well-being linearly decreased by 0.78 points (scale 0–100) per year (95% confidence interval (CI) −0.99 to −0.56) from childhood to young adulthood, whereas QoL in the social relationships domain increased (β coefficient 1.24, 95% CI 0.92–1.55). Severity of impairment was associated with reduced QoL in all life periods of the study (childhood, adolescence, and young adulthood): motor impairment with social relationships, and more nuancedly intellectual disability with psychological well-being and social relationships. At all periods, frequent pain significantly reduced psychological well-being, and seizures were associated with lower QoL in the social relationships domain. In both domains, we identified a group of individuals with CP who presented a reverse trajectory compared with the general QoL trajectory. Conclusion: Identification of QoL trajectories and their associated factors yields improved knowledge about the experience of individuals with CP until young adulthood. Further studies are needed to better understand the determinants that have the greatest influence on the different shapes of long-term trajectories of QoL.</p>
            </abstract>
          </profileDesc>
        </biblFull>
      </listBibl>
    </body>
    <back>
      <listOrg type="structures">
        <org type="researchteam" xml:id="struct-1160983" status="OLD">
          <orgName>Equipe SPHERE (CERPOP)</orgName>
          <date type="start">2021-01-01</date>
          <date type="end">2025-01-01</date>
          <desc>
            <address>
              <addrLine>37 allées J. Guesde 31000 Toulouse</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">https://cerpop.inserm.fr/equipe-sphere</ref>
          </desc>
          <listRelation>
            <relation active="#struct-1061597" type="direct"/>
            <relation active="#struct-217752" type="indirect"/>
            <relation active="#struct-443875" type="indirect"/>
            <relation name="UMR1295" active="#struct-303623" type="indirect"/>
          </listRelation>
        </org>
        <org type="laboratory" xml:id="struct-1043049" status="VALID">
          <idno type="IdRef">14728936X</idno>
          <idno type="ISNI">0000 0004 4687 1979</idno>
          <idno type="RNSR">199511969L</idno>
          <idno type="ROR">https://ror.org/03985kf35</idno>
          <orgName>Translational Innovation in Medicine and Complexity / Recherche Translationnelle et Innovation en Médecine et Complexité - UMR 5525</orgName>
          <orgName type="acronym">TIMC</orgName>
          <date type="start">2021-01-01</date>
          <desc>
            <address>
              <addrLine>Domaine de la Merci, 38706 La Tronche, France</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">https://www.timc.fr/</ref>
          </desc>
          <listRelation>
            <relation active="#struct-301767" type="direct"/>
            <relation name="UMR5525" active="#struct-441569" type="direct"/>
            <relation active="#struct-1042703" type="direct"/>
            <relation active="#struct-1043329" type="direct"/>
          </listRelation>
        </org>
        <org type="institution" xml:id="struct-462070" status="VALID">
          <idno type="IdRef">235605212</idno>
          <idno type="ROR">https://ror.org/00r1edq15</idno>
          <orgName>Universität Greifswald = University of Greifswald</orgName>
          <desc>
            <address>
              <addrLine>Ernst-Moritz-Arndt- University of Greifswald, Domstraße 11, 17489 Greifswald</addrLine>
              <country key="DE"/>
            </address>
            <ref type="url">https://www.uni-greifswald.de/en/</ref>
          </desc>
        </org>
        <org type="institution" xml:id="struct-166039" status="VALID">
          <orgName>Universität zu Lübeck = University of Luebeck [Lübeck]</orgName>
          <desc>
            <address>
              <addrLine>Ratzeburger Allee 160, 23562 Lübeck</addrLine>
              <country key="DE"/>
            </address>
            <ref type="url">https://www.uni-luebeck.de/en/university/university.html</ref>
          </desc>
        </org>
        <org type="regroupinstitution" xml:id="struct-302859" status="VALID">
          <idno type="IdRef">026451492</idno>
          <idno type="ISNI">0000 0000 9919 9582</idno>
          <idno type="ROR">https://ror.org/01tm6cn81</idno>
          <idno type="Wikidata">Q371522</idno>
          <orgName>Göteborgs Universitet = University of Gothenburg</orgName>
          <orgName type="acronym">GU</orgName>
          <desc>
            <address>
              <addrLine>Box 100, SE-405 30 Göteborg</addrLine>
              <country key="SE"/>
            </address>
            <ref type="url">http://www.gu.se/</ref>
          </desc>
        </org>
        <org type="institution" xml:id="struct-207298" status="VALID">
          <idno type="ROR">https://ror.org/01wsqv937</idno>
          <orgName>Azienda Sanitaria Locale Viterbo</orgName>
          <orgName type="acronym">ASL Viterbo</orgName>
          <desc>
            <address>
              <addrLine>via Enrico Fermi, 15,  Viterbo  01100</addrLine>
              <country key="IT"/>
            </address>
            <ref type="url">http://www.asl.vt.it/</ref>
          </desc>
        </org>
        <org type="institution" xml:id="struct-300075" status="VALID">
          <orgName>Centre Hospitalier Universitaire de Toulouse</orgName>
          <orgName type="acronym">CHU Toulouse</orgName>
          <desc>
            <address>
              <addrLine>regroupe les hôpitaux  Purpan, Rangueil, Pierre-Paul Riquet, Larey, Paule de Viguier, Hôtel Dieu Saint-Jacques, La Grave, etc.</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">https://www.chu-toulouse.fr</ref>
          </desc>
        </org>
        <org type="laboratory" xml:id="struct-1061597" status="OLD">
          <idno type="IdRef">252835271</idno>
          <orgName>Centre d'Epidémiologie et de Recherche en santé des POPulations</orgName>
          <orgName type="acronym">CERPOP</orgName>
          <date type="start">2021-01-01</date>
          <date type="end">2025-01-01</date>
          <desc>
            <address>
              <addrLine>37 allées J. Guesde 31000 Toulouse</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">https://www.u1027.inserm.fr/</ref>
          </desc>
          <listRelation>
            <relation active="#struct-217752" type="direct"/>
            <relation active="#struct-443875" type="indirect"/>
            <relation name="UMR1295" active="#struct-303623" type="direct"/>
          </listRelation>
        </org>
        <org type="institution" xml:id="struct-217752" status="OLD">
          <idno type="IdRef">026404672</idno>
          <idno type="ISNI">0000000121617331</idno>
          <idno type="ROR">https://ror.org/02v6kpv12</idno>
          <idno type="Wikidata">Q1273188</idno>
          <orgName>Université Toulouse III - Paul Sabatier</orgName>
          <orgName type="acronym">UT3</orgName>
          <date type="end">2025-01-01</date>
          <desc>
            <address>
              <addrLine>118 route de Narbonne - 31062 Toulouse</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">http://www.univ-tlse3.fr/</ref>
          </desc>
          <listRelation>
            <relation active="#struct-443875" type="direct"/>
          </listRelation>
        </org>
        <org type="regroupinstitution" xml:id="struct-443875" status="VALID">
          <idno type="ROR">https://ror.org/017tgbk05</idno>
          <orgName>Communauté d'universités et établissements de Toulouse</orgName>
          <orgName type="acronym">Comue de Toulouse</orgName>
          <desc>
            <address>
              <addrLine>41 Allée Jules Guesde, 31000 Toulouse</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">https://www.univ-toulouse.fr/</ref>
          </desc>
        </org>
        <org type="institution" xml:id="struct-303623" status="VALID">
          <idno type="IdRef">026388278</idno>
          <idno type="ROR">https://ror.org/02vjkv261</idno>
          <orgName>Institut National de la Santé et de la Recherche Médicale</orgName>
          <orgName type="acronym">INSERM</orgName>
          <desc>
            <address>
              <addrLine>101, rue de Tolbiac, 75013 Paris</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">http://www.inserm.fr</ref>
          </desc>
        </org>
        <org type="institution" xml:id="struct-301767" status="VALID">
          <idno type="ROR">https://ror.org/01c7wz417</idno>
          <orgName>VetAgro Sup - Institut national d'enseignement supérieur et de recherche en alimentation, santé animale, sciences agronomiques et de l'environnement</orgName>
          <orgName type="acronym">VAS</orgName>
          <date type="start">2010-01-01</date>
          <desc>
            <address>
              <addrLine>Université de Lyon, VetAgro Sup, 69280 Marcy l'Etoile (campus vétérinaire); Université de Clermont, VetAgro Sup, 63370 Lempdes (campus agronomique)</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">http://www.vetagro-sup.fr/</ref>
          </desc>
        </org>
        <org type="regroupinstitution" xml:id="struct-441569" status="VALID">
          <idno type="IdRef">02636817X</idno>
          <idno type="ISNI">0000000122597504</idno>
          <idno type="ROR">https://ror.org/02feahw73</idno>
          <orgName>Centre National de la Recherche Scientifique</orgName>
          <orgName type="acronym">CNRS</orgName>
          <date type="start">1939-10-19</date>
          <desc>
            <address>
              <country key="FR"/>
            </address>
            <ref type="url">https://www.cnrs.fr/</ref>
          </desc>
        </org>
        <org type="regroupinstitution" xml:id="struct-1042703" status="VALID">
          <idno type="IdRef">240648315</idno>
          <idno type="ROR">https://ror.org/02rx3b187</idno>
          <orgName>Université Grenoble Alpes</orgName>
          <orgName type="acronym">UGA</orgName>
          <date type="start">2020-01-01</date>
          <desc>
            <address>
              <addrLine>Adresse CS 40700 - 38058 Grenoble cedex</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">http://www.univ-grenoble-alpes.fr</ref>
          </desc>
        </org>
        <org type="institution" xml:id="struct-1043329" status="VALID">
          <idno type="IdRef">026388804</idno>
          <idno type="ROR">https://ror.org/05sbt2524</idno>
          <orgName>Institut polytechnique de Grenoble - Grenoble Institute of Technology</orgName>
          <orgName type="acronym">Grenoble INP</orgName>
          <date type="start">2020-01-01</date>
          <desc>
            <address>
              <addrLine>46 avenue Félix Viallet 38031 Grenoble Cedex 1</addrLine>
              <country key="FR"/>
            </address>
            <ref type="url">http://www.grenoble-inp.fr/</ref>
          </desc>
          <listRelation>
            <relation active="#struct-1042703" type="direct"/>
          </listRelation>
        </org>
      </listOrg>
      <listOrg type="projects">
        <org type="anrProject" xml:id="projanr-43851" status="VALID">
          <idno type="anr">ANR-16-CE92-0022</idno>
          <orgName>TRANSIT-DISAB</orgName>
          <desc>Enjeux d'une transition à l'âge adulte réussie pour les jeunes en situation de handicap: étude de la participation sociale, de la santé et de la qualité de vie dans une perspective vie entière.</desc>
          <date type="start">2016</date>
        </org>
      </listOrg>
    </back>
  </text>
</TEI>