AMD Journee: A Patient Co-designed VR Experience to Raise Awareness Towards the Impact of AMD on Social Interactions - Archive ouverte HAL Access content directly
Conference Papers Year : 2024

AMD Journee: A Patient Co-designed VR Experience to Raise Awareness Towards the Impact of AMD on Social Interactions

Abstract

We present a virtual reality (VR) experience designed to raise awareness towards the impact of low-vision conditions on social interactions for patients. Specifically, we look at age-related macular degeneration (AMD) that results in the loss of central visual field acuity (a.k.a. a scotoma), which hinders AMD patients from perceiving facial expressions and gestures, and can bring about awkward interactions, misunderstandings, and feelings of isolation. Using VR, we co-designed an experience composed of four scenes from the life of AMD patients through structured interviews with the patients and orthoptists. The experience takes the perspective of a patient, and throughout the scenarios, provides voiceovers on their feelings, the challenges they face, how they adapt to their situation, and also bits of advice on how their quality of life was improved through considerate actions from people in their social circles. A virtual scotoma is designed to follow the gaze of the user using the HTC Vive Focus 3 headset with an eye-tracking module. Setting out from a formal definition of awareness, we evaluate our experience on three components of awareness -- knowledge, engagement, and empathy -- through established questionnaires, continuous measures of gaze and skin conductance, and qualitative feedback. Carrying out a experiment with 29 participants, we found not only that our experience had a positive and strong impact on the awareness of participants towards AMD, but also that the scotoma and events had observable influences on gaze activity and emotions. We believe this work outlines the advantages of immersive technologies for public awareness towards conditions such as AMD, and opens avenues to conducting studies with fine-grained, multimodal analysis of user behaviour for designing more engaging experiences.
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hal-04573093 , version 1 (13-05-2024)

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Johanna Delachambre, Hui-Yin Wu, Sebastian Vizcay, Monica Di Meo, Frédérique Lagniez, et al.. AMD Journee: A Patient Co-designed VR Experience to Raise Awareness Towards the Impact of AMD on Social Interactions. IMX 2024 - ACM International Conference on Interactive Media Experiences, Jun 2024, Stockholm, Sweden. ⟨10.1145/3639701.3656314⟩. ⟨hal-04573093⟩
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