Care of Late-Stage Parkinsonism: Resource Utilization of the Disease in Five European Countries - Archive ouverte HAL Accéder directement au contenu
Article Dans Une Revue Movement Disorders Année : 2024

Care of Late-Stage Parkinsonism: Resource Utilization of the Disease in Five European Countries

Carmen Richinger
  • Fonction : Auteur
Christian Schmotz
  • Fonction : Auteur
Lars Tonges
  • Fonction : Auteur
Dirk Woitalla
  • Fonction : Auteur
Stephan Klebe
  • Fonction : Auteur
Bastiaan R Bloem
  • Fonction : Auteur
Adrianus Hommel
  • Fonction : Auteur
Per Odin
  • Fonction : Auteur
Jenny M Norlin
  • Fonction : Auteur
Frida Hjalte
  • Fonction : Auteur
Anette Schrag
  • Fonction : Auteur

Résumé

BACKGROUND: Parkinson's disease (PD) is a neurodegenerative disease that leads to progressive disability. Cost studies have mainly explored the early stages of the disease, whereas late-stage patients are underrepresented. OBJECTIVE: The aim is to evaluate the resource utilization and costs of PD management in people with late-stage disease. METHODS: The Care of Late-Stage Parkinsonism (CLaSP) study collected economic data from patients with late-stage PD and their caregivers in five European countries (France, Germany, the Netherlands, UK, Sweden) in a range of different settings. Patients were eligible to be included if they were in Hoehn and Yahr stage >3 in the on state or Schwab and England stage at 50% or less. In total, 592 patients met the inclusion criteria and provided information on their resource utilization. Costs were calculated from a societal perspective for a 3-month period. A least absolute shrinkage and selection operator approach was utilized to identify the most influential independent variables for explaining and predicting costs. RESULTS: During the 3-month period, the costs were €20,573 (France), €19,959 (Germany), €18,319 (the Netherlands), €25,649 (Sweden), and €12,156 (UK). The main contributors across sites were formal care, hospitalization, and informal care. Gender, age, duration of the disease, Unified Parkinson's Disease Rating Scale 2, the EQ-5D-3L, and the Schwab and England Scale were identified as predictors of costs. CONCLUSION: Costs in this cohort of individuals with late-stage PD were substantially higher compared to previously published data on individuals living in earlier stages of the disease. Resource utilization in the individual sites differed in part considerably among these three parameters mentioned. © 2024 The Authors. Movement Disorders published by Wiley Periodicals LLC on behalf of International Parkinson and Movement Disorder Society.
Fichier principal
Vignette du fichier
BPH_MovDisord_2024_Kruse.pdf (400.92 Ko) Télécharger le fichier
Origine : Publication financée par une institution

Dates et versions

hal-04501150 , version 1 (12-03-2024)

Licence

Paternité - Pas d'utilisation commerciale - Pas de modification

Identifiants

Citer

Christopher Kruse, Anna Lipinski, Malte Verheyen, Monika Balzer-Geldsetzer, Michael Wittenberg, et al.. Care of Late-Stage Parkinsonism: Resource Utilization of the Disease in Five European Countries. Movement Disorders, In press, ⟨10.1002/mds.29718⟩. ⟨hal-04501150⟩

Collections

CNRS ANR U1219
7 Consultations
3 Téléchargements

Altmetric

Partager

Gmail Facebook X LinkedIn More