Umbrella Data Management Plans to Integrate FAIR Data: Lessons From the ISIDORe and BY-COVID Consortia for Pandemic Preparedness - Archive ouverte HAL
Article Dans Une Revue CODATA Data Science Journal Année : 2023

Umbrella Data Management Plans to Integrate FAIR Data: Lessons From the ISIDORe and BY-COVID Consortia for Pandemic Preparedness

1 ERINHA-AISBL - European Research Infrastructure on Highly Pathogenic Agents
2 ELIXIR Hub [Cambridge]
3 University of Naples Federico II = Università degli studi di Napoli Federico II
4 SZN - Stazione Zoologica Anton Dohrn
5 University of Manchester [Manchester]
6 IRIC - Institut de Recherche en Immunologie et en Cancérologie [UdeM-Montréal]
7 EMBL - European Molecular Biology Laboratory
8 Euro-BioImaging - Euro-BioImaging ERIC Bio-Hub
9 EVA Global - European Virus Archive
10 UVE - Unité des Virus Emergents
11 ECRIN - European Clinical Research Infrastructures Network [Dusseldorf]
12 UvA - University of Amsterdam [Amsterdam] = Universiteit van Amsterdam
13 EU-OPENSCREEN
14 BBMRI-ERIC - European research infrastructure for biobanking
15 VIBUGent Center for Plant Systems Biology
16 Génétique et Génomique des Insectes Vecteurs - Genetics and Genomics of Insect Vectors
17 Anthropologie et écologie de l’émergence des maladies - Anthropology and Ecology of Disease Emergence
18 INSTRUCT ERIC
19 CNB-CSIC - Centro national de Biotecnologia = Spanish National Centre for Biotechnology
20 ITMP - Fraunhofer Institute for Translational Medicine and Pharmacology
21 EMBL-EBI - European Bioinformatics Institute [Hinxton]
22 University of Oxford
23 UV - Universitat de València
24 ULR - La Rochelle Université
25 LIENSs - LIttoral ENvironnement et Sociétés
26 European Vaccine Initiative [Heidelberg, Germany]
27 HITS - Heidelberg Institute for Theoretical Studies
28 ATHENA - Research and Innovation Center in Information, Communication and Knowledge Technologies
29 AMU - Aix Marseille Université
30 IRCCS Ospedale Pediatrico Bambino Gesù = Bambino Gesù Children’s Hospital
31 Oxford e-Research Centre [Oxford]
32 EATRIS - European Advanced Translational Research Infrastructure
Katharina Lauer
Carole Goble
Charlotte Wit
Pauline Audergon
Remi Charrel
Wolfgang Fecke
Katja Herzog
Allyson Lister
José López-Coronado
Niklas Blomberg

Résumé

The Horizon Europe project ISIDORe is dedicated to pandemic preparedness and responsiveness research. It brings together 17 research infrastructures (RIs) and networks to provide a broad range of services to infectious disease researchers. An efficient and structured treatment of data is central to ISIDORe’s aim to furnish seamless access to its multidisciplinary catalogue of services, and to ensure that users’ results are treated FAIRly. ISIDORe therefore requires a data management plan (DMP) covering both access management and research outputs, applicable over a broad range of disciplines, and compatible with the constraints and existing practices of its diverse partners. Here, we describe how, to achieve that aim, we undertook an iterative, step-by-step, process to build a community-approved living document, identifying good practices and processes, on the basis of use cases, presented as proof of concepts. International fora such as the RDA and EOSC, and primarily the BY-COVID project, furnished registries, tools and online data platforms, as well as standards, and the support of data scientists. Together, these elements provide a path for building an umbrella, FAIR-compliant DMP, aligned as fully as possible with FAIR principles, which could also be applied as a framework for data management harmonisation in other large-scale, challenge-driven projects. Finally, we discuss how data management and reuse can be further improved through the use of knowledge models when writing DMPs and, how, in the future, an inter-RI network of data stewards could contribute to the establishment of a community of practice, to be integrated subsequently into planned trans-RI competence centres.
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hal-04210490 , version 1 (18-09-2023)

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Romain David, Audrey Richard, Claire Connellan, Katharina Lauer, Maria Luisa Chiusano, et al.. Umbrella Data Management Plans to Integrate FAIR Data: Lessons From the ISIDORe and BY-COVID Consortia for Pandemic Preparedness. CODATA Data Science Journal, 2023, DATA MANAGEMENT PLANNING ACROSS DISCIPLINES AND INFRASTRUCTURES, 22, pp.35. ⟨10.5334/dsj-2023-035⟩. ⟨hal-04210490⟩
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