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Article Dans Une Revue Cardiology in the Young Année : 2023

Prevalence and associated factors of post-traumatic stress disorder in parents whose infants have single ventricle heart disease

Jessica Bainton
Felicia Trachtenberg
  • Fonction : Auteur
Brian Mccrindle
  • Fonction : Auteur
Ke Wang
  • Fonction : Auteur
Richard Boruta
  • Fonction : Auteur
Cheryl Brosig
D’andrea Egerson
  • Fonction : Auteur
Erica Sood
Tammy Doman
  • Fonction : Auteur
Katrina Golub
  • Fonction : Auteur
Amanda Graham
  • Fonction : Auteur
Karen Haas
  • Fonction : Auteur
Michelle Hamstra
  • Fonction : Auteur
Bergen Lindauer
  • Fonction : Auteur
Donna Sylvester
  • Fonction : Auteur
Frances Woodard
  • Fonction : Auteur
Lisa Young-Borkowski
  • Fonction : Auteur
Kathleen Mussatto
  • Fonction : Auteur

Résumé

Abstract Introduction: Post-traumatic stress disorder occurs in parents of infants with CHD, contributing to psychological distress with detrimental effects on family functioning and well-being. We sought to determine the prevalence and factors associated with post-traumatic stress disorder symptoms in parents whose infants underwent staged palliation for single ventricle heart disease. Materials and methods: A large longitudinal multi-centre cohort study evaluated 215 mothers and fathers for symptoms of post-traumatic stress disorder at three timepoints, including post-Norwood, post-Stage II, and a final study timepoint when the child reached approximately 16 months of age, using the self-report questionnaire Impact of Event Scale – Revised. Results: The prevalence of probable post-traumatic stress disorder post-Norwood surgery was 50% of mothers and 39% of fathers, decreasing to 27% of mothers and 24% of fathers by final follow-up. Intrusive symptoms such as flashbacks and nightmares and hyperarousal symptoms such as poor concentration, irritability, and sudden physical symptoms of racing heart and difficulty breathing were particularly elevated in parents. Higher levels of anxiety, reduced coping, and decreased satisfaction with parenting were significantly associated with symptoms of post-traumatic stress disorder in parents. Demographic and clinical variables such as parent education, pre-natal diagnosis, medical complications, and length of hospital stay(s) were not significantly associated with symptoms of post-traumatic stress disorder. Discussion: Parents whose infants underwent staged palliation for single ventricle heart disease often reported symptoms of post-traumatic stress disorder. Symptoms persisted over time and routine screening might help identify parents at-risk and prompt referral to appropriate supports.
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hal-03929914 , version 1 (05-01-2024)

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Jessica Bainton, Felicia Trachtenberg, Brian Mccrindle, Ke Wang, Richard Boruta, et al.. Prevalence and associated factors of post-traumatic stress disorder in parents whose infants have single ventricle heart disease. Cardiology in the Young, In press, pp.1-10. ⟨10.1017/S1047951122004012⟩. ⟨hal-03929914⟩
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