One voice for anaphylaxis in France: The vision of the centre of reference in rare diseases - Archive ouverte HAL Accéder directement au contenu
Article Dans Une Revue Revue francaise d'allergologie Année : 2017

One voice for anaphylaxis in France: The vision of the centre of reference in rare diseases

Résumé

In October 2016, the French Minister of Health launched a call for new Centers of Reference in Rare Diseases (CRRD). In order to support quality clinical practice, prevention and research for patients presenting severe anaphylaxis, together with 15 French public health institutions (Competence Centers in Rare Diseases–CCRD), we submitted a proposal named ANAFIL. French data suggest that fewer than 30,000 people are affected by severe anaphylaxis, with 9.2 per 100,000 person-years based on data from the University Hospital of Montpellier. Cumulative incidence is an inadequate measurement here, since the reaction is no longer active once the episode is resolved and one patient can present different episodes of anaphylactic reactions. Covering 7 of 12 administrative regions in France, all 16 centres making up the ANAFIL network are linked to academic activities, supported by medical and patient associations. Given that anaphylaxis is considered a public health issue by the global allergy community, the ANAFIL proposal provides a key window of opportunity for the construction of a solid academic French consortium that will redress implementation gaps in the field.
Fichier non déposé

Dates et versions

hal-03791465 , version 1 (29-09-2022)

Identifiants

Citer

Luciana Kase Tanno, Pascal Demoly. One voice for anaphylaxis in France: The vision of the centre of reference in rare diseases. Revue francaise d'allergologie, 2017, 57 (8), pp.583-587. ⟨10.1016/j.reval.2017.06.004⟩. ⟨hal-03791465⟩
8 Consultations
0 Téléchargements

Altmetric

Partager

Gmail Facebook X LinkedIn More