Managing Patient Records in Complex Systems in Time of Epidemics
Résumé
With the recent promulgation of the General Data Protection Regulations, data management is becoming a crucial strategic issue in organizations. The quality of data dissemination is of utmost importance in the healthcare environment. Indeed, medical confidentiality is closely linked to the dissemination of personal information inherent in the patient's record. Yet, how can a complex system, composed of multiple multidisciplinary actors (medical, paramedical, administrative, etc.), deal with the potential disclosure of personal data? What steps can be taken to manage this risk? With the current health crisis of the COVID-19, those questions become essential. Medical confidentiality and crisis management has to deal with massive ethical issues related to the use of personal data. The interoperability of professionals and the quality of care are more crucial than ever, considering the need to limit the spread of the virus. To answer these questions, a case study was conducted in the Multidisciplinary Care House of Mimizan (France, Landes, New Aquitaine Region). The goal was to investigate the importance of human and data management for traceability of care and for crisis management. This medical organization is composed of medical and paramedical professionals, but also a relatively large administrative team for such an institution. The results highlight that this organization manages to set up, at the initiative of the professionals, both flexible and structured processes, allowing optimal follow-up of patients, while guaranteeing respect for their personal information.
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