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                <term xml:lang="en">social isolation within the community</term>
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                <term xml:lang="fr">maladies chroniques syndrome de fatigue chronique</term>
                <term xml:lang="fr">Pandémie  Covid 19</term>
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              <p>The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other contained patients could only use self‐care strategies, especially in countries that have set up a long and strict containment such as France. The study aimed to compare coping strategies deployed by patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS; a poorly recognised syndrome) to those with better known and referenced chronic conditions. An online flash survey was conducted during the containment period in partnership with French Patients Organizations including ME/CFS national association. Therefore, ‘Brief COPE’ version of Lazarus and Folkman's Ways of Coping Check List has been adapted to the specificity of the containment. The survey was e‐distributed in France from 15 April to 11 May 2020. Differences of coping strategies were analyzed using Wilcoxon–Mann–Withney test. Amongst 637 responses, 192 were complete, presenting a wide variety of diseases, including 93 ME/CFS. The latter have significantly different coping strategies than recognised diagnosed diseases patients: similar uses of emotion focused coping but less uses of seek social support and problem‐focused copings. In conclusion, coping strategies are different for those who deal with the daily experience of ME/CFS, highly disabling chronic condition with diagnostic ambiguity, low degree of medical and social recognition and without treatment. Better understanding of those strategies is needed to provide the means for health promotion researchers, managers and clinicians, to accompany those patients.</p>
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              <p>La pandémie de COVID-19 a concentré les systèmes de santé sur le soutien aux patients touchés par ce virus. Pendant ce temps, dans la communauté, de nombreux autres patients confinés ne pouvaient utiliser que des stratégies d'auto-soins, en particulier dans les pays qui ont mis en place un long et strict confinement comme la France. L'étude visait à comparer les stratégies d'adaptation déployées par les patients atteints d'encéphalomyélite myalgique/syndrome de fatigue chronique (EM/SFC ; un syndrome mal reconnu) à celles de patients souffrant de maladies chroniques mieux connues et référencées. Une enquête flash en ligne a été menée pendant la période de confinement en partenariat avec des associations de patients françaises dont l'association nationale ME/CFS. Par conséquent, la version "Brief COPE" de la liste de contrôle des moyens de faire face de Lazarus et Folkman a été adaptée à la spécificité du confinement. L'enquête a été distribuée par voie électronique en France du 15 avril au 11 mai 2020. Les différences de stratégies d'adaptation ont été analysées à l'aide du test de Wilcoxon-Mann-Withney. Parmi les 637 réponses, 192 étaient complètes, présentant une grande variété de maladies, dont 93 EM/SFC. Ces derniers ont des stratégies d'adaptation significativement différentes de celles des patients atteints de maladies diagnostiquées : utilisation similaire de l'adaptation centrée sur les émotions, mais utilisation moindre de la recherche de soutien social et de l'adaptation centrée sur les problèmes. En conclusion, les stratégies d'adaptation sont différentes pour ceux qui font face à l'expérience quotidienne de l'EM/SFC, une maladie chronique hautement invalidante, au diagnostic ambigu, au faible degré de reconnaissance médicale et sociale et sans traitement. Une meilleure compréhension de ces stratégies est nécessaire pour donner les moyens aux chercheurs, gestionnaires et cliniciens de la promotion de la santé, d'accompagner ces patients.</p>
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