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Article Dans Une Revue Acta Dermato-Venereologica Année : 2015

Burden of Inherited Ichthyosis: A French National Survey

Khaled Ezzedine
Pierre Vabres

Résumé

Moderate to severe ichthyosis is known to have a significant impact on quality of life. A French national survey was performed to describe in more detail how ichthyosis impacts the patients' lives. A questionnaire specifically dedicated to ichthyosis was distributed to patients followed in hospital expert centres or members of the French association of patients. A total of 241 questionnaires were completed and returned (response ratio: 29% for children and 71% for adults). A negative impact of ichthyosis was obvious in terms of domestic life (skin care, housework, clothing, etc.), educational/professional lives (rejections by other children, workplace discrimination, absenteeism, etc) and for leisures/sports activities. The patient's economical resources were also heavily impacted by ichthyosis with important out-of-pocket expenses.

Dates et versions

hal-03156104 , version 1 (02-03-2021)

Identifiants

Citer

Isabelle Dreyfus, Céline Pauwels, Emmanuelle Bourrat, Anne-Claire Bursztejn, Annabel Maruani, et al.. Burden of Inherited Ichthyosis: A French National Survey. Acta Dermato-Venereologica, 2015, 95 (3), pp.326-328. ⟨10.2340/00015555-1955⟩. ⟨hal-03156104⟩
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